Prepping for meds!

I kid you not when I say Josh and I were on the phone for hours today trying to deal with all this madness.  The poor kiddos just kept being shooed from one room to another just so we could hear.  And now,at the end of the day, we really don't know much more than we did when we started this morning. :) 

We will be leaving for MDACC first thing in the morning and we have the expectation that Josh will officially begin treatment.  You know we were waiting for the approval from the insurance company for the clinical trial, and we think they approved it.  Nobody really knows what they are talking about.  Different answers from every single person we talked to.  All that I know is that there is no way I am leaving that building tomorrow without a bottle of chemo pills in my hand!!  If insurance decides not to cover it for whatever reason then we will work on paying it off for the rest our my lives -   we just have to get started, right?

All of the disability foolishness will hopefully be worked out tomorrow too.  We didn't think we would be meeting with the doctor, but it turns out that we will.  We are happy that we will get to talk to him about this whole disability situation.  So more bloodwork, another meeting with Dr. Quintas, meeting with the nurse in charge of the trial, and then some sort of review of his blood tests.  Another long day it looks like.  But an exciting one!!

We are busy trying to figure out Josh's new eating schedule and routine he will have to get into.  The pills have to be taken on an empty stomach - no eating 2 hours before or 1 hour after taking the pill.  And then the pills have to be 12 hours apart.  So it will kind of be a mess for Josh since he rotates days and nights during the week.  It means he won't be able to snack on his way home, which is how he stays awake for the long drive!  I told him he will have to enjoy eating ice instead.  Don't you love eating ice?  And Josh's job  has a sonic ice machine!  Isn't that great?  He says eating ice is gross, though.  What is wrong with this man?  He will also have to eat at specific times during his shift at night, which could prove to be problematic.  Josh doesn't get a lunch break, so he grabs a bite whenever he can.  He just moved to a different desk that is extremely busy where it can prove to be difficult to snack.  I told him he has to just tell his supervisors to deal with it cause he has no choice about these eating times now!  We'll see how that goes over. :)

Feeling sad tonight cause we were supposed to take the kids to the Aggie's spring game on Saturday, but it looks like we won't be able to now.  You know there is not much in this world that Josh loves more than Aggie football, and it is exciting that Noah is finally at the age to really begin enjoying it.  And the boys are slightly obsessed with the Aggie band, so they were really looking forward to it.  Noah told us tonight he had the best idea - to bring his Reveille dog with him to the game.  Just broke my heart tonight to tell them we won't be able to go.  Josh will only be two pills into his treatment, so we are afraid to be so far away in case he isn't feeling well. 

So for tomorrow please pray that all the paperwork stuff goes smoothly, and that Josh actually gets some treatment!  And please pray for our sweet boys to deal with all this change going on.  Noah is so sensitive, and he has been acting a bit off, so please pray for his precious little heart.